Wednesday, July 31, 2013

MRI, Results, & THE Surgery Date

Today was a big day.

Jack went back for his MRI around 11:50a and Marleigh had a meeting with her neurosurgeon at 12:30p. Thankfully both appointments were at Cook Children's downtown and we had the help of family to allow us to be both places at once ;)

Jack handled the whole thing wonderfully. He stayed admirably sane throughout the day considering fasting is needed for a procedure under general anesthesia and  he's a little dude that requires sustenance immediately after waking up to function properly. All in all it was about 19 hours from the time he ate before bed yesterday to the time he finally ate after the MRI this afternoon. Very proud of him. 

At Marleigh's appointment we discussed all of her test results with the neurosurgeon. Everything came back close enough to "normal" and he gave the green light for Chiari decompression surgery. He went into great detail describing the entire procedure to us, and somehow Jared and I got through the "risks of surgery" speech without throwing up and/or passing out... though I swear at one point the room started spinning.
We chose his earliest available date: Tuesday August 13th at 9:30a.

Not long after getting home for the afternoon, we got a call from the pediatrician's office. They already had the results back from Jack's MRI. They said while he doesn't have a Chiari Malformation similar to Marleigh's, the test did show abnormalities they're concerned about. The nurse said it's called Cerebellar Ectopia. She couldn't really answer any of my questions, but from what I gather online it's like a mild version of Chiari where the cerebellar tonsils sit lower in the skull than normal- but not low enough to be considered Chiari. Very confusing. He's being referred to Marleigh's neurosurgeon for further treatment. 
Hopefully we'll get more answers then and understand what this means for our little man.



Waiting room video gamin'.
Waking up.




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